I have had ME for a long time: too
long. In the early days I tried various, often dubious, and
sometime plain wacky, treatments that were about. Not too
surprisingly they had little effect and, to be honest, when that
month’s miracle (and usually expensive) cure did not work I was
pretty devastated. Every method had someone saying how much it
had improved them but this only ever appeared to be a marginal
improvement and then for a select few, for a short time. In the
end I gave up trying and used a careful regime of rest and activity (a
sort of pacing) that worked reasonly well to control things.
I now think things are changing … there appears to be a number
of, well ok, lets be honest, dubious sounding and expensive treatments
but they do appear to have some very promising results. A common
feature is a problem with various hormonal systems, such as the
thyroid, adrenal, immune and others within the body, often controlled
by a part of the brain called the hypothalamus. At this point I
must apologise to all those who I am misrepresenting because this is
very much my own warped and ignorant interpretation.
There appear to be two major approaches to this problem: taking
hormones directly (as advocated by Doctors Peatfield and Myhill) and a
talking approach (such as Reverse Therapy, Mickel and Lightning
Therapies). I have had more direct contact with the latter, which
appeal as they do not involve taking a cocktail of rather potent drugs.
So how can talking stop, cure or help ME? None of them consider
ME to be psychological, all in the mind or trivial. They take
slightly different approaches but there appears to be a common thread
that they allow the body to get out of a state that is either caused by
or causes ME. This involves a lot of work on your part; one
has to be committed and is not for the faint-hearted. It is
difficult to measure ME improvement so things are very controversial,
but some have claimed very high success rates. They are not
perfect but I think they are worth investigating and may well lead onto
an even more successful method. From my own experiences with
Reverse Therapy there is a unique feeling when things click and come
right which I have not had in the years of ME.
Is it time to be more optimistic for future treatments? I think it could be.
RICHARD
We would be very interested in any response from readers to Richard’s article.
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