Media Watch

In the past this column has expressed some cynicism about the Daily Mail’s coverage of ME, and, in particular, its propensity to push various ‘wonder cures.’  The article in the January 9th 2007 edition could be dismissed as another in the Mail’s “Is this the cure for ME? Series”.  In fact the article, which appeared under the heading “Could ME be caused by too much adrenaline?” was an interesting case study on 17 year old Leonie Gough, who believes she has been cured by the ‘Lightning Process’ (see Autumn 2006 Newsletter where we referred to it as ‘Lightning Therapy’).

A year ago Leonie was practically bed-ridden with ME.  Now she has returned to full time education thanks to “a simple mind programme called the Lightning Process”.  Central to the Lightning Process is the notion that adrenaline plays a key role in ME, and that sufferers are caught in an ‘adrenaline loop’ of fatigue – anxiety – adrenaline – fatigue.

However the Mail, also, quotes Dr Neil Abbott of ME Research UK, who points out that there is, thus far, no scientific evidence of an adrenaline rise in ME.  “The only thing that will create general acceptance of the principles and treatment techniques applied by the Lightning Process will be large scale tests” he cautions.

A Note from the Editor

Although we have had a few welcome articles from readers recently, this newsletter still relies too much on the contributions of a handful of individuals.  It would, I’m sure, be better if it reflected, to a greater extent, the views, anxieties, and opinions of the wider membership of the ME Support Group.  Your contributions and feedback are very much needed.  Also, if you see or hear anything interesting in the media about ME, do let us know.  Don’t assume we’ve already seen it.  Contacting the ME Group – By phone:  call Sandra – 01347 810841; E-mail:  newsletteryorkmesupport.org.uk.
Newsletter Editor:  Brian Elmer, 101 Bellhouse Way, YORK, YO24 3LW.

Disabled Persons Railcard

Eligibility criteria for this scheme have been broadened to include anyone receiving long term Incapacity Benefit, or DLA at any level.  The railcard is £18 for one year and £48 for 3 years and users can get a third off most train tickets, plus certain hotel discounts.  Do not apply at a station, but phone 0191 218 8103 for application form/booklet.

Fundraising Events

The ME Support Group will be holding a fund raising collection at Dean’s Garden Centre, Stockton on Forest on Saturday, 7th July.  More on this in the next newsletter.