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YORK & DISTRICT M.E. SUPPORT GROUP

For People Affected by CFS/ME in Selby & York & the East Side of North Yorkshire

www.YorkMESupport.org.uk/

Extras

This page contains some extra articles and news that could not wait for the paper newsletter, or have not made it because they arrived after the deadline or due to lack of space

Survey
E-Petition
Leeds & West Yorkshire CFS/ME Service Funding crisis
Sandra Tomlinson is Group's new chair
Gas Rebate
YOGA  -  THE GENTLE WAY BACK TO HEALTH

Leeds & West Yorkshire CFS/ME Service Funding crisis

Added 14 June 2006, additional information 20 August 2006

The Leeds & West Yorkshire CFS/ME Service is used by many members of the York support group and includes the Chronic fatigue unit, Seacroft Hospital, Leeds. In early June 2006 we received a statement from Leeds & West Yorkshire CFS/ME Team that contains the following:

There are currently issues about the future funding of the Leeds and West Yorkshire CFS/ME Service. We are looking at which services we will be able to continue to provide. Negotiations are currently taking place between the Leeds Mental Health Teaching NHS Trust, Primary Care Trusts and other agencies.

If people wish to comment or express concern on this situation please send your views in writing to:-

Kim Bunton  - CSM
Dept. of Liaison Psychiatry
Rose Garden Offices
LGI
Great George Street
LEEDS
LS1 3EX

This is a real concern, not only to the many who use the service, but as a signal this gives to all concerned with ME, both now and in the future. Any reduction in the Leeds service could also have a knock on effect for services within York. We know that energy is limited for most of us but we ask you to try to write to the address and give your views.

The service provides vital information (to both patients and the medical profession) and treatment on all aspects of the illness, without which more sufferers will become chronically ill, be given the wrong treatment, and take more time and resources within the NHS. All of which have a financial implications and call into doubt the long term validity of any funding savings. The eminence of the service is such that a loss would have implications at a national level.

KEY MESSAGES REGARDING THE SPECIALIST M.E. SERVICES

Added 20 August 2006
Here are some other important points you may want to emphasise about the services.
Action for M.E.    
8 August 2006

Estimated prevalence of M.E. by region

Estimates of incidence are based on a research paper by Gallagher et al in the Journal of the Royal Society of Medicine, December 2004.  Please note that the M.E. Alliance believe that incidence is twice as high as the figures given here.   

Region#

Population

PREVALENCE

INCIDENCE

North East

2,515,442

10,266

1,069

North West

6,729,764

27,465

2,861

Yorkshire and the Humber

4,964,983

20,263

2,111

East Midlands

4,172,174

17,027

1,774

West Midlands

5,267,308

21,497

2,239

East

5,388,140

21,990

2,291

London

7,172,091

29,271

3,049

South East

8,000,645

32,652

3,401

South West

4,928,434

20,114

2,095

 

Wales

2,903,085

11,848

1,234

Scotland*

5,062,011

20,659

2,152

Northern Ireland

1,702,628

6,949

724

 

240,000

25,000



Notes:

1. Prevalence = How many people are estimated to have CFS/M.E.

2. Incidence = How many people are estimated to get CFS/M.E. per annum

3. See notes on page 2 for further information on the regions

4. The Medical Research Council has identified epidemiological research as a major deficit and a key subject for future research into CFS/M.E. 

5. Pending such research the estimates of prevalence are based on existing sources, i.e. research into prevalence in the USA, and the UK government estimate that the NHS should plan on the basis that 1 person in 250 is affected

6. For the media we suggest simplifying the numbers, thus the North East would be "Over 1,000 people in the North East will get M.E. this year"

Source: Mid 2003 Population Estimates, Office for National Statistics;
General Register Office for Scotland; Northern Ireland Statistics and Research Agency
* 2001 census

# Standard Regions:

South East: Kent, Surrey, Sussex, Hampshire & Isle of Wight, Berkshire, Buckinghamshire, Oxfordshire

South West: Bristol (and former County of Avon), Cornwall & Isles of Scilly, Devon, Dorset, Gloucestershire, Somerset, Wiltshire

North East: Durham, Northumberland, Former County of Cleveland

North West: Cheshire, Cumbria, Lancashire, Liverpool, Greater Manchester

Eastern: Bedfordshire, Cambridgeshire, Essex, Hertfordshire, Norfolk, Suffolk

East Midlands: Derbyshire, Leicestershire, Lincolnshire, Rutland, Northamptonshire, Nottinghamshire

West Midlands: Herefordshire, Shropshire, Staffordshire, Warwickshire, Worcestershire, Former County of West Midlands

Yorkshire & The Humber: Yorkshire (except for former county of Cleveland), Former South Humberside (North East Lincolnshire & North Lincolnshire Unitary Authorities)

London: City of London and all London Boroughs

Action for M.E.    
8 August 2006       

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