This is a copy of the group's Useful Contacts Information. A pdf
is available here
bytes) which is ideal if you want to print a copy. You will need a pdf
viewer which you can get free from here
Alternatively, view it online below.
The links were last updated on 10 January 2006.
There is a
lot of data here so I've broken it down in to a number of sections:
ACTION FOR ME 0845 123 2380
One of two large national Organisations. They offer a quarterly
newsletter and other services. They have counselling, listening ear
service, welfare benefits help and children’s service and
website, residential rehabilitation courses. They can also put you in
touch with special interest groups. http://www.afme.org.uk/
For children: http://www.a4me.org.uk/
‘Connect’, information and support service (members) 0870
444 1835 (non-members) 0870 444 183610-12 noon, 2.00-4.00pm
25% ME GROUP
For people with severe Myalgic Encephalomyelitis. Services include:
newsletter; talking book service; group library.
AYME - ASSOCIATION OF YOUNG PEOPLE WITH ME
Help line 08451 23 23 89. Free for people with ME between 5 and 25
years old and parents/ carers. Telephone helpline, books and videos
available and an opportunity to make friends with other people affected
by ME. Produce a magazine and can help out with problems about schools
and home tutors etc.
ME NORTH EAST 0191 389 2222
Provides information and advice for people living in the North
East. Contact list for young people.
NATIONAL ME SUPPORT CENTRE 01708 378050
Provides inpatient and outpatient care of patients with chronic fatigue
syndromes of all types. Offers counselling and is also linked to the
Regional Neurological Unit at Oldchurch Hospital where facilities exist
for inpatient assessment and rehabilitation.
The Young Me Sufferers Trust (TYMES TRUST) 01245 401080.
Supports young people and carers. Free up to age 26, subscription over
26. Partnership with virtual education provider, members over 16 can
access free virtual education. Magazine, Advice Line, Tymes Trustcard
(a "pass card" for school) supported by Secondary Heads Association.
NEIGHBOURING SUPPORT GROUPS
Leeds: Enquiry Line 0113 298 2070
Doncaster (Leger): Mike Valentine 01302 787353
Hull & East Yorkshire: Gillian 01964 550530
Middlesborough: 01642 324994
Northallerton: Shirley Sneddon 01609 770921
We hope the following gives an idea of the other help available.
The list isn’t exhaustive and is as up to date as possible
– if you come across a local organisation to add to the list or
find any errors do let us know. Further local information (and often
advice eg on benefits) can be found from the websites on page 4, from
your local council, CVS, or disability organisation such as:
YORK DISABILITY INFORMATION AND ADVICE CENTRE (DIAC)
SCARBOROUGH DAG (Disablement Action Group) 01723 379397
SELBY & DISTRICT DIAL 01757 210495
WHITBY & DISTRICT DAG (Disablement Action Group) 01947 821001
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