WEB SITES
There is a vast amount of information on health, disability and ME
related issues including sites for many of the organisations above eg
NHS Direct. There are groups for friendship and sites where you can get
advice, for example by e-mail, or, from message boards. You can also
keep in touch with the latest
research and other news eg by joining a list such as Co-cure. Do
remember though, that the quality of information on the web varies.
Fairly comprehensive links pages to other useful sites from:
ACTION FOR ME - Links to separate
site for children
DIAL UK - general disability
site
RADAR - general disability
site
ME CHAT an e-mail support list for people with ME links to local
support groups, (eg to Sussex Group with links to the websites of some
private Doctors), discussion groups etc.
http://www.mechat.co.uk
Information on ME and Other Health Problems include:
AXFORD'S
ABODE - Research info on CFS/ME & links to medical sites
C0-CURE - information forum,
including
info on research and theories
IMMUNE SUPPORT.COM -
Comprehensive American website on ME and
Fibromyalgia
MERGE - aim to identify,
and
fund research
UK PEOPLE SUPPORT - info & a
forum
US CFIDS ASSOCIATION
ABOUT.COM - Health and Fitness category
- information on a variety of
illnesses
SURGERY DOOR - Information
on
medical conditions etc and healthy
living. Links to sites on healthy eating etc
THYROIDUK Info on thyroid, links
research etc
LYME DISEASE Info on Lyme
For Benefits try links from AfME, DIAL etc and also government sites:
APPEALS SERVICE -
Useful information if you are appealing against a
benefits decision
DEPT FOR WORK AND PENSIONS -
Includes information on benefits (and even
the publications used by decision makers and doctors when deciding your
case)
For practical help -See websites of organisations above and try:
ME TIPS - Lots of subjects. Severe ME section carries old Action
for
ME articles on managing severe ME can be accessed via
http://www.trevwilliams.co.uk/metips
DISABLED LIVING FOUNDATION -
Extensive
list of fact sheets on choosing
equipment
YOUREABLE.COM - Comprehensive
disability site: travel, equipment work,
news etc.
For friendship or contacts or try national organisations eg AYME(for
children), ME chat (above) and it's link pages, or:
www.mecfsparents.org.uk
(for
parents with ME);
aquamarinetuk@yahoo.co.uk
(socialising network for UK ME sufferers
20-39 years);
www.brainfog.org
or
www.meconnection.co.uk
The
M.E. Support web
site also contains a host of information with lots of facilites,
services and resorces. You can email them at
louise@mesupport.bigstep.com
Further Information
INFORMATION and/or advice is available from your local library,
citizen's advice bureau or local disability organisation. The York
Citizen's Guide 2005, which lists organisations in and around York,
will be available soon.
On-line guides:
York CVS:
Scarborough & District
There are many good books on Chronic Fatigue Syndrome and ME available
from good bookshops (and sometimes your local library) or online from
the national ME organisations etc. These include Living with M.E. by Dr
Charles Shepherd Vermilion ISBN: 0091816793 and Somebody Help Me Jill
Moss Sunbow Books (specifically aimed at children)
The Group would like to thank the Leeds group for allowing us to use
their list as a basis for this document.
Jenny Gilmore York & District ME Support Group 03/06/05
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